USMAN NASEER KHAN: CANCER WARRIOR AND MUSICIAN

Written by Noor I Najam Khan

Introduction

Fighting leukemia while being a musician might seem impossible, but Usman Naseer Khan proves otherwise. In a heartfelt interview, he shared his struggles, challenges, and victories in his healing journey. “Your body will tell you when something is wrong”. Don't go down the rabbit hole of Google and start searching up your symptoms, instead get tested and reach out for help. 

Usman Naseer Khan is a musician and sales employee, currently fighting his battle against leukemia for which he was diagnosed in September of 2024. As a result of Bone Marrow Aspiration, he was diagnosed with Acute Myeloid Leukemia with Maturation (AML-M2) during a follow-up checkup for Hepatitis C. Since his diagnosis he has been sharing his journey with his audience on his Instagram page, enlightening and informing others of the symptoms, treatments and potential risks. He has shown remarkable strength, repeatedly assuring himself and his audience by quoting “WE GOT THIS” in each of his posts for the treatment update. Post two chemotherapy sessions and a bone marrow transplant he is currently on the path to recovery.

The Moment everything changed

Leukemia, which is blood cancer, affects the body’s blood-forming tissues including the bone marrow and lymphatic system, directly interfering with the body’s ability to produce normal functioning cells and platelets. “I think this is news no one wishes to hear and any normal human being would be devastated,” says Usman remembering the time when he received the news of his diagnosis. He uses the words “anger, demotivation, and agitation” to describe the storm that unfolded inside him upon receiving the devastating news. In the chaos that unfolds one often ends up questioning themselves “Is it something I did wrong or was it meant for me?”. A heart-wrenching reflection that he was faced with during the time of adversity. “I took my car out for a drive, crying and screaming in agony to pour my heart out in a conversation with God”. 

However, the strength with which he picked himself back up is not commonly heard of. “Since Diagnosis had already been confirmed I decided to fight and I prayed for patience as the journey forward would be difficult”. His bravery and courage are highlighted in the way he remarks:

“اس کے بعد میں نے پیچھے مڑ کر نہیں دیکھا” 

“I didn't look back after that."

Showcasing his journey 

Since his diagnosis in September 2024, Usman has shared his journey with his audience on Instagram, thinking of how to inform others and help people going through something similar even when faced with a difficult time himself. People have shown him support from various countries including the United States, United Kingdom, India, Bangladesh, Sri Lanka, Nepal, Iran, Syria, and Pakistan. “Cancer is a disease, and it does not see your colour, age, race, religion, and country” highlighted Usman. In his interview, he stated, “I wanted to disclose my journey”. Since leukemia patients are usually children, his diagnosis came as a surprise to him and like many of us he was completely unaware of what leukemia was. However after diagnosis his world changed and he looked around to see that many small children were going through something similar to him and as unbearable it was for them it wasn't for him, believes Usman. “When a disease like cancer comes along your body starts to give signs early on but we as human beings disregard them and doctors don't diagnose it considering that it's not possible at this age”. Repeatedly he emphasised, “Get yourself tested if you feel something off about your body; it is better to diagnose it early on because cancer knows no age”. 

“It's not just medicine that beats cancer, it is your attitude”. Usman thought that maybe his willingness to fight will inspire someone else and encourage people to get themselves tested. Eventually not only did people shower him with support but they connected with him and started talking more about cancer. He himself made a support group called “Leukemia Support Group Pakistan” on Facebook to allow people across Pakistan battling cancer to connect with each other and through shared experiences make this battle a little less challenging. In a country like Pakistan where such efforts are rarely seen, Usman’s efforts are a stepping stone in recognising not only the physical but the mental health of cancer warriors in Pakistan, challenging the stigma that prevails in society against it. He is also part of an international US-based support group called “AML supporters” and it has developed into a widespread supportive community now allowing people to share advice, encouragement, and experiences. 

Lessons

Cancer reveals the incredible strength of the human spirit and the mental resilience one can possess, as Usman describes it as a "humbling experience" that changes one’s perspective on life. Initially diagnosed with hepatitis C he felt as if a calamity had struck him, however, looking back, he realizes it was much “better” than facing cancer. At 87 days post-transplant, Usman refuses to let cancer define him; instead, he views it as a challenge he bravely confronted and overcame.

Day 0

A bone marrow transplant will make your immunity go zero, forcing you to start living very cautiously. “You are like a newborn baby,” said Usman. “The bone marrow you were born with is in fact gone and the transplant day is termed as day 0 because your immunity will develop itself again”. Usman’s donor is his older sister with a Major ABO mismatch (mismatched blood group) due to which his blood group will change from AB+ to B+ in a few months. His body now has 2 DNAs, his own and his sisters. Additionally not only will his hair color change but he will develop the same allergies as his sister. He will be vaccinated again like a newborn baby with no immunity of its own. 

Lifestyle changes 

Significant lifestyle changes, particularly regarding diet, are essential. He explained, “Everything is made at home and fresh; no reheating of food, as the body is vulnerable to opportunistic diseases.” He also mentioned, “Eventually, you develop a habit and begin to live a more cautious life, completely cutting out sugar and adopting a healthy diet. Your relationship with God evolves, and you build a deeper connection with Him.”

Healing Journey

The song “Sab ko Sab Nahi Milta” (not everyone gets everything) of the Pakistani band “Bayaan” resonates with Usman deeply as he is able to relate and understand the lyrics much more profoundly now. Additionally, his own song “Musafir” which he wrote himself and released in 2021 carries a deep sentiment for him as he can now understand the depth of the words better. His music expresses what usually his words cannot, allowing him to pour his feelings onto a piece of paper and bring life to them with beautiful melodies. 

Due to his hospital stay his routine and lifestyle have changed. From waking up early in the morning and offering the morning prayer to breakfast at 6 am, lunch at 12 pm, and dinner at 6 pm, the routine is actually very delightful and allows you to have a good night’s sleep. “Such habits are still part of my life as I have become used to them and since these are good habits they will go a long way”.

Advice for people around Cancer Patients 

When connecting with cancer patients, people often approach them by sharing stories about someone they knew who had cancer and sadly passed away. This leaves the patient wondering how to respond, said Usman: "Should I sympathize with you, or are you sympathizing with me?" 

In terms of support, it's essential to simply be present. Your presence matters; just letting the other person know that you are there for them is crucial. Even if the patient doesn't actively seek help, it’s important to reassure them of your existence and support, regardless of whether they push you away or refuse assistance. As Usman explained, “Be there and ask... ask.” Support from loved ones and family can make this difficult journey a little easier.